Full disclosure: I am not eating as well as I should be. Though I am a nutritionist, the past week has seen me skipping breakfast, eating chocolate covered graham crackers and
drinking diet coke. Last night some family went out for Mexican food and I had them bring me back nachos with beans and guacamole. For dinner. At 10pm. Yikes. After eating, I went back in to see Mom and she asked what I had for dinner. I admitted that it was a bad choice, but she sort of got fixated on it. I told her I had plenty of leftovers and would be happy to give her some beans and guacamole, but she decided to wait until tomorrow. So I brought it home and figured I'd bring it for her for lunch today. Well, at 4am, she woke up with an insatiable hankering for Mexican food. She and my dad were awake from 4-7am trying to get something that would satisfy. Finally, the cafeteria opened and they ordered something, but by that time, she was exhausted and fell fast asleep. They both did. And then, her radiation treatment that was originally scheduled at 3pm was pushed to 10am, which wasn't communicated. So, they were sound asleep when the technicians came to get them and they rushed for treatment. In the rush, Mom didn't get her pre-radiation pain medication. So, by 11:30 when I arrived at the hospital (with leftover nachos), she was in a lot of pain. Ross gave her a great massage that she raved about for the rest of the day, and eventually the nurses got her pain medication caught up, but it was a reminder for all of us that she needs a little pre-funk before radiation.
Luckily, that was all of the treatment on the agenda today. And I stuck to my guns and vastly limited the people who got to see her. She still had plenty of visitors, but they were well spaced out and three at a time, max. She got in an awesome nap in the evening in addition to the in and out sleeping that goes on during the day. I'm hopeful that she'll feel better tomorrow after having a restful day today.
Tomorrow will be her first chemotherapy treatment. It will be administered via the Ommaya Reservoir that was implanted a couple of days ago. The oncologist told us the only side effect is headache, which she already has. She shouldn't feel nauseous or otherwise uncomfortable. Fingers crossed for an easy treatment.
Other notes on today:
- A dietitian finally came up to ask about her eating habits. We told her she wasn't eating much at all and they ordered a protein shake for her that she LOVES. Super loves. She even called it the best thing ever and asked if she could buy them at the grocery store.
- Her vision is almost completely gone.
- Today was the first day she's been disoriented at all. It was brief, but she got confused this morning in the radiation department and my dad had to explain why she was there. She also had a moment where she was telling me something about Hillary Clinton that I couldn't follow, but that may have been a dream. She also had several moments of stellar memory and put us all to shame in recalling family stories
- She LOVES the blog comments and asks for them to be read to her. I also read her all of the people who sent their love via Facebook (mostly people I went to middle and high school with and haven't seen in 10 years) and she was so touched-of course she remembers them all.
- She thanked Gary for coming to town and being a support for me; she told him that she knew that I needed the support and was so happy that he is in my life.Then she told him to send her love to his parents. She really is the sweetest person around.
- She got her Mexican food! I brought in the leftover nachos, scraped the beans out, mashed them up with the guacamole and that was lunch. She said it wasn't the best Mexican food ever, but it hit the spot.